I just wanted to put all of this out to those who care before I get a thousand texts and emails. I do not see myself online for the few days. So much has happened in the past week. I just need to take a break.
First we are fine. Losing Derek has been hard on all four of us. We have been so invested in their family since day one. My brain cannot comprehend that we won't be seeing him anymore. Team Derek was a part of our family. I do believe I am still in shock, because it just doesn't seem real. Please just know we are as good as we can be with all that has hit us recently.
The best news is that Chaz is set to be discharged from the hospital this afternoon. Everything is looking very good. He will be receiving antibiotics for eight weeks at home. This is our third discharge with a PICC line and Deryn has called dibs on it. (I think we have a nurse in the making). We are so happy for him to be coming home. Originally they thought he'd be there the rest of this week. So this news yesterday was a very bright light for us.
In other news, the girls and I are going to DC today. We were supposed to all four have been there Sunday for me to work and for Chaz to get his new legs. I delayed our trip 48 hours so we could figure everything out. Chaz is going to our home with my Mom and sister while we are gone. The girls are coming with me. Yes I have care plans for everyone. My plans would make your head spin, but the good news is I have them.
The past few days have been incredibly tough on me. I have been pulled in 46,000 directions it seems. Words cannot describe how incredibly stressful this past week has been for us. So please before you judge me for going to DC without Chaz, please know he insisted I go. And please know I have already dealt with some incredibly insensitive people the past few days who have no idea what this journey is like. Let me tell you there's nothing like someone who has no clue of what you have to deal with trying to make you feel like a bad person because you are attempting to help so many at one time. Luckily I know a few great caregivers who gave me some pep talks yesterday. I am so thankful for the ladies who know exactly what I am going through.
I am taking the girls with me because we have so many friends there who want to help us and to be honest I want them with me. I have missed them so much this past week. After what happened yesterday, Chaz is happy one of us can be there for Derek's family. It's so strange sometimes how everything works out.
Because of the recent events, I am taking a time out from the online world. I am going to get on a plane today with our girls and enjoy them. Then I am going to get to Walter Reed and help where I can.
The past week has been very hard on our girls too and they need some Mommy time. Just know that all is as good as it could be. Know that we are fine. Know that God has a plan for all of us even if it breaks out hearts every once in a while. And know you cannot have a testimony without tests. Thank you for your support and I'll update again in a few days!!